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  • Cooke, Ashby
    replied
    Yes it is. Your new seat sounds great. I hope we get some more decent weather. Could you believe it when the papers were threatening a hosepipe ban last weekend?

    Leave a comment:


  • Mariers2, Rushden
    replied
    Originally posted by Cooke, Ashby View Post
    I suspect admin are not working at all. I am also getting strange error messages. Everything takes much longer to deal with. I was blaming the hospital pathetic WiFi, but home seems the same.

    we have a fairly chilly miserable day today. What is it like where you are?
    It was cooler than it's been lately.I even had an error when I was forwarding some jokes to the regular list. My d.i.l. told us they have bought us a present because they lovw and miss us. It's a garden 3 seater with a canopy. and they want tocome and assemble it once it is delivered. The only place for it is at present occupied with a wooden table and 2 seats attached, so Ken wheeled it through to our front, where it is gravelled, among some potted plants. Isn't it great to be spolt?

    Leave a comment:


  • Cooke, Ashby
    replied
    I suspect admin are not working at all. I am also getting strange error messages. Everything takes much longer to deal with. I was blaming the hospital pathetic WiFi, but home seems the same.

    we have a fairly chilly miserable day today. What is it like where you are?

    Leave a comment:


  • Mariers2, Rushden
    replied
    Originally posted by Cooke, Ashby View Post
    I admire your technical skills. I could manage the scanning and attachments, but it ends there.

    my lovely F2 oncologist spoke to the microbiology team about my infections and it was decided I needed another day on iv then I could go home with tablets. Bless him, Will did my discharge for after my evening iv yesterday, so I didn’t need to spend another night there. It also meant I could be discharged from the ward, not the discharge lounge. The discharge lounge scares me. What is the sense in social isolation at home if they sit you in a confined space with the world, his wife and all their coughs and sneezes?
    I suppose it's possible theythink everyone who they discharde must be completely free of any germs/bugs, whatever and their belief is anyone coming into a ward is probably bronging thins in ,thus needing isolating. ,if that makes sense.
    Thanks for calling my efforts "skills"; believe me it's hunting for instructions on line, then hopefully following them properly, and also trial and error. As with most technology, if one corrects something and everything goes right, then the solution gets forgotten because it is not practised every day, is it?

    I'm still getting "invalid server error" with each post, so I have to go back and check if it has been accepted. Sometimes it's hidden and I have to click Restore. It is taking so long to go through all the posts, I am getting really fed up with it,and wonder if it's worth the hassle. Admin never answered me, so maybe they are "Working from home"?

    Leave a comment:


  • Cooke, Ashby
    replied
    I admire your technical skills. I could manage the scanning and attachments, but it ends there.

    my lovely F2 oncologist spoke to the microbiology team about my infections and it was decided I needed another day on iv then I could go home with tablets. Bless him, Will did my discharge for after my evening iv yesterday, so I didn’t need to spend another night there. It also meant I could be discharged from the ward, not the discharge lounge. The discharge lounge scares me. What is the sense in social isolation at home if they sit you in a confined space with the world, his wife and all their coughs and sneezes?

    Leave a comment:


  • Mariers2, Rushden
    replied
    I had an idea you'd have done the writing bit. From what I've read of prisons, some seem to be living in the lap of luxury, compared to some of the poor people. Ieven heard of some prisoners not wanting to be released at the end of their term, because they'd had a better life inside than they could wish for outside.
    I spent most of yesterday searching for any pieces of information, letters, emails, about our aborted holiday. I had collected quite a few pieces and printed them recently, but I had to scan some to be able to use as attachments. The people at visa disputes team wanted as much evidence sent to them, and after some searching, managed to put them all into a compressed file and sent it off last evening. Now we have to wait, and I'm wondering will Iremember how I did the attachments and file compressing?

    Leave a comment:


  • Cooke, Ashby
    replied
    No, it is not that I can’t be bothered it is hard with a canula in one arm. Not always the same arm. Even something as simple as eating a yoghurt is difficult with only one hand. You chase it round the tray. There is no where to put a jigsaw. I can move around, but have to take the drip stand with me and we are not allowed out of our four bed bay because of isolation. I did the writing thing when I was at school and can still do it. It would be difficult now because I couldn’t hold the paper still. I’m reading a book in two days, fortunately Alison is keeping me supplied. Alan brings clean clothes every few days and takes the washing home, but he can only come as far as the ward door. It really is worse than prison. Don’t they have TV?

    Leave a comment:


  • Mariers2, Rushden
    replied
    That sounds as though thevarious things they need to monitor you are always doneto one hand.A lot depends on whether you have to be in bed while all of it is going on,or if you can move around a bit. if the hand used is the same one you write or hold things in, it means you are limited as to what you coud possibly do. If it is, you could try teaching yourself to write upside down or back to front. It takes a bit of concentration, but itmight help take your mind away from the usual things,. i used to do it because my grandfather could and my thoughts have always made me want todo what somebody else could. Now. i often read pieces of things from the paper my husband is looking at. it might be possible to do a jigsaw using one hand, if Alan could get one for you. Apparently the Queen has a large one and it is left for anyone toput pieces in where they belong,as they pass it by, so it could takea long time to complete it.
    You are not going to say you don't do any of those things,because you can't be bothered are you?????.

    Leave a comment:


  • Cooke, Ashby
    replied
    Yesterday, today and tomorrow are all the same for me. One long round of blood tests, IVs and crap food. If anyone can suggest ways of occupying my self that involve only the use of one hand, I should be grateful. There is only so long one can sit and read, isn’t there?

    Leave a comment:


  • Mariers2, Rushden
    replied
    That, my dear is something only you can answer. There can be many phrases that occur to you, but some could simply be excuses, and there's no need to spend time trying to pick one. you, and everyone can't change what happened yesterday, and until you have spent today doing whatever things you are doing, there's little point in worrying about what you may or may not do tomorrow, because for one thing tomorrow never comes; there's a prayer rattling around which I can't remember but it has the words "change the things that can be changed, accept what can't and wisdom to know the difference. " sounds logical, but isn't it difficult to always do?

    Leave a comment:


  • Cooke, Ashby
    replied
    No, meditation is not one of my skills. I wish I could. I over think things and upset myself. I know I have developed an acute anxiety disorder that the antidepressant is mostly keeping under control. Instead of going into complete meltdown, I sit and cry quietly. I’ve tried remembering good times, but that makes me cry more. I’ve had a very privileged life, so why am I such a miserable cow?

    Leave a comment:


  • Mariers2, Rushden
    replied
    It's not an easy one to answer; as I can only speak from my own position. I do know that when I'm faced with a choice or decision, I often argue with myself, with what ifs. if i stop now, something will happen and I'll wish I had gone on; it could also go the opposite way, if I keep on, maybe I'll wish I had stopped. I've heard and read that if you empty your mind and sit quietly, thinking of nothing else, an answer will come to you. I find it hard to think of nothing, can you do it?

    ​​​​​​​This post I did yesterday and today it had been hidden.

    Leave a comment:


  • Cooke, Ashby
    replied
    My choice is to live or die. It is as simple as rant. Why would I want to live in hospital. With no family contact. Every day is the same unless I have yet another procedure

    Leave a comment:


  • Mariers2, Rushden
    replied
    It's not an easy one to answer; as I can only speak from my own position. I do know that when I'm faced with a choice or decision, I often argue with myself, with what ifs. if i stop now, something will happen and I'll wish I had gone on; it could also go the opposite way, if I keep on, maybe I'll wish I had stopped. I've heard and read that if you empty your mind and sit quietly, thinking of nothing else, an answer will come to you. I find it hard to think of nothing, can you do it?

    Leave a comment:


  • Cooke, Ashby
    replied
    I have no choice Marie. The cancer will win and all the fight has gone out of me. I have been in hospital three weeks out of the last five. It is a miserable existence with rubbish food, no visitors, TV or radio and blood tests every morning plus four iv antibiotics a day. This is not bringing about any improvement to how I feel. Knowing there is no hope, wouldn’t you want an end to it?

    Leave a comment:


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